Hello, Everyone...for the Ataxia Profile this week we will be learning Chanda Huy's story...and it pleases me to be able to introduce her to you:
Chanda is working on trying to adjust and adapt to the diagnosis of Spinocerebellar Ataxia that she received a year ago. The form that she has is hereditary...and was passed down to her by her father. All of the simple things that are a part of everyday life...tasks that she used to do without thought or effort like walking, remaining balanced while standing, and speaking clearly...have now become exhausting and take concentration. Chanda relates that she has had to trade-in all her fancy and fashionable high-heels for stable sneakers.
The diagnosis has been hard for Chanda and her husband...and has been discouraging at times. But Chanda's husband has been a rock during this first frustrating year and has helped her acquire and maintain a positive outlook. Finding and attending support groups has also been beneficial for Chanda...which she refers to as one of the best medicines. Lastly, love and strength shown by Chanda's family and friends have been priceless. The last year has been a tedious and difficult journey...but all the love, strength and support shown to her have been precious to her.
Thank you for your story Chanda...and the openness and honesty that you relate in the difficulty. These realities are important for us to reflect on....because the truth is, that those of us who have grown-up with Ataxia, or dealt with it for years...often forget that there are people like you that are experiencing these life changes on a newer basis...maybe even for the first time. It is not insignificant and anything we can do to help and encourage you in your journey...we will do!
Together we are stronger...and I wish you the best.
Until next time my friends...stay safe,
Jason
She is beautiful! With a beautiful spirit!!
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