I will let Bill tell you a little bit about himself:
I’ve always been awkward and clumsy, but I wasn’t diagnosed with
any abnormality until age 40-ish (I’m 60 now). My first diagnosis of
“cerebellar degeneration” came from a neurologist in a nearby city who I was
very displeased with. I got my primary care doctor to refer me to Emory where
they made the general diagnosis of ataxia. Haven’t had genetic testing for a
specific diagnosis yet because (1) it’s so expensive, and (2) my neurologist
hasn’t encouraged it.
My hobbies/interests didn’t really change much when I was
diagnosed. I worked, drove, sang, read, rode my bicycle.... As I’ve aged,
things HAVE changed. I was able to keep working until I became eligible for
regular retirement, but then I quit. No future in driving 30 miles in the dark
every morning. Haven’t stopped driving, but I pretty much confine it to around
my small town during daylight.
I still sing, but I notice that I’m not able to enunciate as well
as I once was. Hope that doesn’t become something that makes me quit. Don’t
read as much as I used to. My eyes don’t track very well, and I think that’s
why I don’t enjoy it as much. The bicycle eventually became a recumbent
tricycle, and a couple of years ago I stopped riding altogether. My peripheral
vision’s pretty much gone, and I didn’t feel real safe. Also, I couldn’t carry
around the rollator I’ve started using.
My main ‘new’ hobby is going to the gym 4-5 days a week. Don’t
lift weights, but I stretch and spend 30 minutes each on the rowing machine and
the stair-stepper. I feel like the exercise and the fact that I watch my weight
have combined to keep me ambulatory.
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Thanks, Bill! I really like the example given of helping unload groceries...but at the same time, being realistic about things like moving furniture. I am in the same place...and continuing to do what It helps me to remain positive. Good word, Bill!
Until next time...take care, and I will write again soon. Jason
When you want to see people with faith, strength and determination you can look to people like Bill, Kathy and their daughter. Thank you for sharing your story. God bless each of you.
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